Patients For Patients

Now available: Key findings and videos

Key information from the MPN LANDMARK SURVEY is now available for review and sharing. It includes a summary of the findings and some interviews with the MPN LANDMARK SURVEY steering committee members.

The patient-friendly summary includes separate surveys of patients and physicians about MF, PV, and ET. It highlights the commonalities and differences for these diseases in five key areas:

  • Diagnosis
  • Symptoms
  • Disease impact
  • Treatment and management
  • Patient-physician communications

More importantly, the information illuminates in detail the patient experience with regard to the physical, psychological, emotional, and financial challenges faced by individuals living with MPNs.

Dr. Ruben Mesa Discusses Findings From the MPN Landmark Survey
Dr. Ruben Mesa Discusses Findings From the MPN Landmark Survey
Sara Goldberger Discusses Insights From the MPN Landmark Survey
Dr. Jim Mangan Discusses Findings From the MPN Landmark Survey
Maureen Thyne Discusses Findings From the MPN Landmark Survey
Dr. Salman Fazal Discusses Findings From the MPN Landmark Survey

Meet the MPN LANDMARK SURVEY Steering Committee

The MPN LANDMARK SURVEY was developed by a steering committee comprised of MPN experts and thought leaders, including MPN specialists, allied health providers, patient advocates, epidemiologists and survey experts.

Professor of Medicine, College of Medicine, Mayo Clinic, Scottsdale, AZ
Senior Vice President, ICF International, Fairfax, VA
Western Pennsylvania Cancer Institute, Pittsburgh, PA
Program Officer, Patient-Centered Outcomes Research Institute (PCORI), Washington, DC
Cancer Support Community, New York, NY
Yale School of Public Health, New Haven, CT
University of Pennsylvania, Philadelphia, PA
Icahn School of Medicine at Mount Sinai, New York, NY
St. Agnes Hospital, Baltimore, MD
Weill Cornell Medical College, New York, NY
Fred Hutchinson Cancer Research Center, Seattle, WA

The committee would like to acknowledge and thank the innumerable patients, doctors, caregivers, and advocates who were the inspiration for this research and contribute so much to bringing understanding, compassion, and strength to the MPN community.



Key Findings About MPNs

The insights below provide a quick look at the significant impact of MPNs as reported by patients in the survey. For a more robust understanding of the life-altering effects of MPNs, read the full report from the MPN LANDMARK SURVEY.